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TABLE 1

Sexuality Education Resources for Pediatric Health Care Providers 

Resource Information
For parents  
 Center for Parent Information & Resources www.parentcenterhub.org (also in Spanish) 
 Couwenhoven T. Boyfriends & Girlfriends: A Guide to Dating for People With Disabilities. Bethesda, MD: Woodbine House; 2015 — 
 Healthybodies.org (Vanderbilt) Boys/Girls https://vkc.vumc.org/healthybodies/files/HealthyBodies-Boys-web.pdf; Includes a free online packet entitled “Healthy Bodies for Boys: A Parent’s Guide for Boys with Disabilities” (and a separate one for girls); https://vkc.vumc.org/healthybodies/files/HealthyBodies-Girls-web.pdf 
Bright Futures: Guidelines for Health Supervision of Infants, Children, and Adolescents, Fourth Edition https://brightfutures.aap.org/Pages/default.aspx; Promoting Healthy Sexual Development and Sexuality; Adolescent Visits 
 Sexuality Resource Center for Parents Teaching children across the age ranges 0–18; http://www.srcp.org/for_all_parents/development.html 
 AMAZE https://amaze.org AMAZE uses digital media to provide young adolescents with medically accurate, age-appropriate, affirming, and honest sex education they can access directly online. AMAZE also strives to assist adults–parents, guardians, educators and health care providers–to communicate effectively and honestly about sex and sexuality with the children and adolescents in their lives. www.amaze.org 
Condition-specific resources for pediatric health care providers  
 ASD AAP Autism Toolkit (Handout): Sexuality of Children and Youths with Autism Spectrum Disorder: https://toolkits.solutions.aap.org/autism/handout/504891; Autism Speaks: ATN/AIR-P Puberty and Adolescence Resource: https://www.autismspeaks.org/docs/family_services_docs/parentworkbook.pdf; Kate E. Reynolds books to help learn about puberty: What's Happening to Ellie? A Book About Puberty for Girls and Young Women With Autism and Related Conditions (2015); What’s Happening to Tom? A Book About Puberty for Boys and Young Men With Autism and Related Conditions (2015) 
 Cerebral palsy Glader L, Stevenson R. Children and Youth with Complex Cerebral Palsy: Care and Management. London, United Kingdom: Mac Keith Press; 2019. (chapters 17 and 18) 
 Spina bifida The Spina Bifida Association: https://www.spinabifidaassociation.org/guidelines/; Centers for Disease Control and Prevention: https://www.cdc.gov/ncbddd/spinabifida/adult.html#sexual-health 
 Down syndrome Chicoine B, McGuire D. The Guide to Good Health for Teens and Adults with Down Syndrome. Bethesda, MD: Woodbine House; 2010; Couwenhoven T. Teaching Children with Down Syndrome About Their Bodies, Boundaries, and Sexuality: A Guide for Parents and Professionals. Bethesda, MD: Woodbine House; 2005 
 Other US National Library of Medicine, Genetics Home Reference: https://ghr.nlm.nih.gov/condition; An up-to-date genetic review of genetic conditions, easily searchable alphabetically, including rare microdeletions 
For schools and educators  
 Sexuality and Disabilities: A Guide for Professionals https://www.routledge.com/Sexuality-and-Intellectual-Disabilities-A-Guide-for-Professionals/Triska/p/book/9781138231023 (2018). This book provides a concise overview of sexuality and gender identity in clients with intellectual disabilities for therapists, social workers, educators, and health care providers 
 Seattle and King County Sexual Health Education Curriculum https://www.kingcounty.gov/depts/health/locations/family-planning/education/FLASH.aspx 
 Advocates for Youth https://advocatesforyouth.org/wp-content/uploads/storage//advfy/documents/Factsheets/sexual-health-education-for-young-people-with-disabilities-educators.pdf 
Resource Information
For parents  
 Center for Parent Information & Resources www.parentcenterhub.org (also in Spanish) 
 Couwenhoven T. Boyfriends & Girlfriends: A Guide to Dating for People With Disabilities. Bethesda, MD: Woodbine House; 2015 — 
 Healthybodies.org (Vanderbilt) Boys/Girls https://vkc.vumc.org/healthybodies/files/HealthyBodies-Boys-web.pdf; Includes a free online packet entitled “Healthy Bodies for Boys: A Parent’s Guide for Boys with Disabilities” (and a separate one for girls); https://vkc.vumc.org/healthybodies/files/HealthyBodies-Girls-web.pdf 
Bright Futures: Guidelines for Health Supervision of Infants, Children, and Adolescents, Fourth Edition https://brightfutures.aap.org/Pages/default.aspx; Promoting Healthy Sexual Development and Sexuality; Adolescent Visits 
 Sexuality Resource Center for Parents Teaching children across the age ranges 0–18; http://www.srcp.org/for_all_parents/development.html 
 AMAZE https://amaze.org AMAZE uses digital media to provide young adolescents with medically accurate, age-appropriate, affirming, and honest sex education they can access directly online. AMAZE also strives to assist adults–parents, guardians, educators and health care providers–to communicate effectively and honestly about sex and sexuality with the children and adolescents in their lives. www.amaze.org 
Condition-specific resources for pediatric health care providers  
 ASD AAP Autism Toolkit (Handout): Sexuality of Children and Youths with Autism Spectrum Disorder: https://toolkits.solutions.aap.org/autism/handout/504891; Autism Speaks: ATN/AIR-P Puberty and Adolescence Resource: https://www.autismspeaks.org/docs/family_services_docs/parentworkbook.pdf; Kate E. Reynolds books to help learn about puberty: What's Happening to Ellie? A Book About Puberty for Girls and Young Women With Autism and Related Conditions (2015); What’s Happening to Tom? A Book About Puberty for Boys and Young Men With Autism and Related Conditions (2015) 
 Cerebral palsy Glader L, Stevenson R. Children and Youth with Complex Cerebral Palsy: Care and Management. London, United Kingdom: Mac Keith Press; 2019. (chapters 17 and 18) 
 Spina bifida The Spina Bifida Association: https://www.spinabifidaassociation.org/guidelines/; Centers for Disease Control and Prevention: https://www.cdc.gov/ncbddd/spinabifida/adult.html#sexual-health 
 Down syndrome Chicoine B, McGuire D. The Guide to Good Health for Teens and Adults with Down Syndrome. Bethesda, MD: Woodbine House; 2010; Couwenhoven T. Teaching Children with Down Syndrome About Their Bodies, Boundaries, and Sexuality: A Guide for Parents and Professionals. Bethesda, MD: Woodbine House; 2005 
 Other US National Library of Medicine, Genetics Home Reference: https://ghr.nlm.nih.gov/condition; An up-to-date genetic review of genetic conditions, easily searchable alphabetically, including rare microdeletions 
For schools and educators  
 Sexuality and Disabilities: A Guide for Professionals https://www.routledge.com/Sexuality-and-Intellectual-Disabilities-A-Guide-for-Professionals/Triska/p/book/9781138231023 (2018). This book provides a concise overview of sexuality and gender identity in clients with intellectual disabilities for therapists, social workers, educators, and health care providers 
 Seattle and King County Sexual Health Education Curriculum https://www.kingcounty.gov/depts/health/locations/family-planning/education/FLASH.aspx 
 Advocates for Youth https://advocatesforyouth.org/wp-content/uploads/storage//advfy/documents/Factsheets/sexual-health-education-for-young-people-with-disabilities-educators.pdf 

—, not applicable

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