Sexuality Education Resources for Pediatric Health Care Providers
| . | Resource Information . |
|---|---|
| For parents | |
| Center for Parent Information & Resources | www.parentcenterhub.org (also in Spanish) |
| Couwenhoven T. Boyfriends & Girlfriends: A Guide to Dating for People With Disabilities. Bethesda, MD: Woodbine House; 2015 | — |
| Healthybodies.org (Vanderbilt) Boys/Girls | https://vkc.vumc.org/healthybodies/files/HealthyBodies-Boys-web.pdf; Includes a free online packet entitled “Healthy Bodies for Boys: A Parent’s Guide for Boys with Disabilities” (and a separate one for girls); https://vkc.vumc.org/healthybodies/files/HealthyBodies-Girls-web.pdf |
| Bright Futures: Guidelines for Health Supervision of Infants, Children, and Adolescents, Fourth Edition | https://brightfutures.aap.org/Pages/default.aspx; Promoting Healthy Sexual Development and Sexuality; Adolescent Visits |
| Sexuality Resource Center for Parents | Teaching children across the age ranges 0–18; http://www.srcp.org/for_all_parents/development.html |
| AMAZE | https://amaze.org AMAZE uses digital media to provide young adolescents with medically accurate, age-appropriate, affirming, and honest sex education they can access directly online. AMAZE also strives to assist adults–parents, guardians, educators and health care providers–to communicate effectively and honestly about sex and sexuality with the children and adolescents in their lives. www.amaze.org |
| Condition-specific resources for pediatric health care providers | |
| ASD | AAP Autism Toolkit (Handout): Sexuality of Children and Youths with Autism Spectrum Disorder: https://toolkits.solutions.aap.org/autism/handout/504891; Autism Speaks: ATN/AIR-P Puberty and Adolescence Resource: https://www.autismspeaks.org/docs/family_services_docs/parentworkbook.pdf; Kate E. Reynolds books to help learn about puberty: What's Happening to Ellie? A Book About Puberty for Girls and Young Women With Autism and Related Conditions (2015); What’s Happening to Tom? A Book About Puberty for Boys and Young Men With Autism and Related Conditions (2015) |
| Cerebral palsy | Glader L, Stevenson R. Children and Youth with Complex Cerebral Palsy: Care and Management. London, United Kingdom: Mac Keith Press; 2019. (chapters 17 and 18) |
| Spina bifida | The Spina Bifida Association: https://www.spinabifidaassociation.org/guidelines/; Centers for Disease Control and Prevention: https://www.cdc.gov/ncbddd/spinabifida/adult.html#sexual-health |
| Down syndrome | Chicoine B, McGuire D. The Guide to Good Health for Teens and Adults with Down Syndrome. Bethesda, MD: Woodbine House; 2010; Couwenhoven T. Teaching Children with Down Syndrome About Their Bodies, Boundaries, and Sexuality: A Guide for Parents and Professionals. Bethesda, MD: Woodbine House; 2005 |
| Other | US National Library of Medicine, Genetics Home Reference: https://ghr.nlm.nih.gov/condition; An up-to-date genetic review of genetic conditions, easily searchable alphabetically, including rare microdeletions |
| For schools and educators | |
| Sexuality and Disabilities: A Guide for Professionals | https://www.routledge.com/Sexuality-and-Intellectual-Disabilities-A-Guide-for-Professionals/Triska/p/book/9781138231023 (2018). This book provides a concise overview of sexuality and gender identity in clients with intellectual disabilities for therapists, social workers, educators, and health care providers |
| Seattle and King County Sexual Health Education Curriculum | https://www.kingcounty.gov/depts/health/locations/family-planning/education/FLASH.aspx |
| Advocates for Youth | https://advocatesforyouth.org/wp-content/uploads/storage//advfy/documents/Factsheets/sexual-health-education-for-young-people-with-disabilities-educators.pdf |
| . | Resource Information . |
|---|---|
| For parents | |
| Center for Parent Information & Resources | www.parentcenterhub.org (also in Spanish) |
| Couwenhoven T. Boyfriends & Girlfriends: A Guide to Dating for People With Disabilities. Bethesda, MD: Woodbine House; 2015 | — |
| Healthybodies.org (Vanderbilt) Boys/Girls | https://vkc.vumc.org/healthybodies/files/HealthyBodies-Boys-web.pdf; Includes a free online packet entitled “Healthy Bodies for Boys: A Parent’s Guide for Boys with Disabilities” (and a separate one for girls); https://vkc.vumc.org/healthybodies/files/HealthyBodies-Girls-web.pdf |
| Bright Futures: Guidelines for Health Supervision of Infants, Children, and Adolescents, Fourth Edition | https://brightfutures.aap.org/Pages/default.aspx; Promoting Healthy Sexual Development and Sexuality; Adolescent Visits |
| Sexuality Resource Center for Parents | Teaching children across the age ranges 0–18; http://www.srcp.org/for_all_parents/development.html |
| AMAZE | https://amaze.org AMAZE uses digital media to provide young adolescents with medically accurate, age-appropriate, affirming, and honest sex education they can access directly online. AMAZE also strives to assist adults–parents, guardians, educators and health care providers–to communicate effectively and honestly about sex and sexuality with the children and adolescents in their lives. www.amaze.org |
| Condition-specific resources for pediatric health care providers | |
| ASD | AAP Autism Toolkit (Handout): Sexuality of Children and Youths with Autism Spectrum Disorder: https://toolkits.solutions.aap.org/autism/handout/504891; Autism Speaks: ATN/AIR-P Puberty and Adolescence Resource: https://www.autismspeaks.org/docs/family_services_docs/parentworkbook.pdf; Kate E. Reynolds books to help learn about puberty: What's Happening to Ellie? A Book About Puberty for Girls and Young Women With Autism and Related Conditions (2015); What’s Happening to Tom? A Book About Puberty for Boys and Young Men With Autism and Related Conditions (2015) |
| Cerebral palsy | Glader L, Stevenson R. Children and Youth with Complex Cerebral Palsy: Care and Management. London, United Kingdom: Mac Keith Press; 2019. (chapters 17 and 18) |
| Spina bifida | The Spina Bifida Association: https://www.spinabifidaassociation.org/guidelines/; Centers for Disease Control and Prevention: https://www.cdc.gov/ncbddd/spinabifida/adult.html#sexual-health |
| Down syndrome | Chicoine B, McGuire D. The Guide to Good Health for Teens and Adults with Down Syndrome. Bethesda, MD: Woodbine House; 2010; Couwenhoven T. Teaching Children with Down Syndrome About Their Bodies, Boundaries, and Sexuality: A Guide for Parents and Professionals. Bethesda, MD: Woodbine House; 2005 |
| Other | US National Library of Medicine, Genetics Home Reference: https://ghr.nlm.nih.gov/condition; An up-to-date genetic review of genetic conditions, easily searchable alphabetically, including rare microdeletions |
| For schools and educators | |
| Sexuality and Disabilities: A Guide for Professionals | https://www.routledge.com/Sexuality-and-Intellectual-Disabilities-A-Guide-for-Professionals/Triska/p/book/9781138231023 (2018). This book provides a concise overview of sexuality and gender identity in clients with intellectual disabilities for therapists, social workers, educators, and health care providers |
| Seattle and King County Sexual Health Education Curriculum | https://www.kingcounty.gov/depts/health/locations/family-planning/education/FLASH.aspx |
| Advocates for Youth | https://advocatesforyouth.org/wp-content/uploads/storage//advfy/documents/Factsheets/sexual-health-education-for-young-people-with-disabilities-educators.pdf |
—, not applicable